Obama signs into law groundbreaking bill providing medical care to water contamination survivors – About the Janey Ensminger Act & Camp Lejeune Families Act of 2012 included

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Jerry Ensminger with his daughter Janey who died at the age of 9 after being diagnosed with childhood leukemia caused by the cancer-causing chemicals in the water at the Camp Lejeune military base where they lived.

Article courtesy of EcoWatch | August 7, 2012 | Shared as educational material only

President Obama signed a groundbreaking bill into law on Aug. 6, establishing medical coverage for as many as 750,000 people who were exposed to cancer-causing contaminants in the water on North Carolina’s Camp Lejeune military base between 1957 and 1987.

The campaign was led by Jerry Ensminger, whose daughter Janey died from leukemia after being exposed to water at Camp Lejeune. Earlier this year, Ensminger started a Change.org petition that rallied more than 135,000 people behind health care for Lejeune survivors.

Ensminger was present in the Oval Office when President Obama signed the bill into law.

“I have been waiting for this moment for fifteen years,” said Ensminger. “I am thankful to every single one of the 135,000 people who signed my petition, and everyone who has supported this important campaign over the years.”

The Camp Lejeune crisis is widely referred to as the largest water contamination incident in American history, having spanned more than three decades and exposed as many as a million people to cancer-causing chemicals. The contamination at the base has been well-documented through the years, though Ensminger says the U.S. government has been slow to respond to calls for medical help for affected veterans and their families.

“I hope other communities who have suffered like the people of Camp Lejeune will be inspired by what we have accomplished,” said Ensminger. “It’s taken years of work to pass this historic bill, and I hope our time and effort will make it easier for others. I can’t bring my daughter back, but I am so proud that Janey’s name is on this bill to inspire others to work for justice.”

Ensminger has testified before Congress and is the subject of the award-winning documentary Semper Fi: Always Faithful. He also co-founded the organization The Few, The Proud, The Forgotten, which connects survivors of Camp Lejeune’s water contamination.

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WASHINGTON — President Barack Obama on Monday signed into law legislation to provide health care to thousands of sick Marine veterans and their families who were exposed to contaminated water at Camp Lejeune in North Carolina.

Retired Marine Jerry Ensminger and cancer survivor Mike Partain stood looking over the president’s shoulder as he, with the swipe of his pen, vindicated all their late nights poring over undisclosed documents, cross-country trips to seek out other victims, and countless battles with Marine Corps officials who, they say, continue to ignore their pleas.

“Sadly, this act alone will not bring back those we’ve lost, including Jane Ensminger,” Obama said before signing the bill, named partly after Ensminger’s daughter, “but it will honor their memory by making a real difference for those who are still suffering.”

Janey Ensminger was just 9 years old when she died in 1985 of a rare form of leukemia. Her father spent years trying to make sense of her painful death.

But in 1997, he saw a news report about contaminated water at Camp Lejeune. Janey Ensminger was conceived at the base in the 1970s and diagnosed with leukemia in 1983.

Her father’s life then turned into a David-and-Goliath story, as he and Partain took on the 236-year-old Marine Corps, culminating with the signing of the law in the Oval Office.

“I’m still in shock,” said Partain. “We’ve been fighting for justice for so long. Fighting the juggernaut of the Marine Corps. They should have quashed us a long time ago. And they almost did.”

Despite its previous contention that there was insufficient evidence to prove the illnesses were related to service at Camp Lejeune, the Marine Corps said in a statement Monday that it was pleased and supported the new law.

Partain, who was born on the base, already had been diagnosed with male breast cancer when he learned of Ensminger’s efforts. A claims adjustor for State Farm Insurance, Partain figured his investigative skills would be helpful to their mutual cause.

Their combined efforts eventually led to the passage of a bill, introduced by Sen. Richard Burr, R-N.C., that would provide health care for people who lived or worked at the base from Jan. 1, 1957, through Dec. 31, 1987. They also must have a condition listed within the bill linked to exposure to dangerous chemicals.

The law is expected to help thousands of veterans and their families who were exposed to drinking water that was poisoned with trichloroethylene, tetrachloroethylene, benzene and vinyl chloride.

McClatchy Newspapers obtained documents in 2010 showing that potentially as much as 1.1 million gallons of fuel, containing benzene, leaked from underground storage tanks on the base. Benzene is a fuel solvent known to cause cancer in humans.

Burr, along with Sen. Kay Hagan and Rep. Brad Miller, both North Carolina Democrats, has advocated strongly for the government to help the sick Marines and their families.

The law provides health care for 15 diseases and illnesses, including several cancers, female infertility and scleroderma, a group of diseases that causes skin and sometimes internal organs to become hard and tight. Miller, the original sponsor of the Janey Ensminger Act, which was included in a modified version of Burr’s bill, said studies are under way to learn whether there are connections between the poisoned water and other illnesses, including multiple sclerosis, Parkinson’s disease and Lou Gehrig’s disease.

Meanwhile, the federal scientists who have been studying the contamination have several reports yet to come: on the extent and type of contamination, on death rates among Lejeune Marines, on male breast cancer and on miscarriages and birth defects.

The Department of Veterans Affairs will determine the process for how veterans and family members can obtain health benefits under the new law.

Partain and Ensminger say their fight for justice is far from over. They want a meeting with Gen. James Amos, the Marine commandant, and for members of the corps to be held accountable.

“This is just like Penn State,” said Partain, referring to the child sexual abuse scandal that school officials allegedly attempted to keep under wraps. “These people recognize what they did. They recognize what it could possibly do to the Marine Corps as far as the damage to its reputation. And they chose to cover it up rather than do the honorable thing and stand up and say, ‘We made a mistake, and we hurt some people. Let’s take care of it.’ ”

Ensminger dedicated 25 years of his life to the Marine Corps. What hurts most, he says, is that the Marines continue to not take responsibility for their sick members.

“If a family has a problem, don’t they usually sit down and talk things out?” Ensminger said. “They do unless they’re dysfunctional. So guess what? The Marine Corps family is dysfunctional.”

About the bill:

The Honoring America’s Veterans and Caring for Camp Lejeune Families Act of 2012 provides health care to victims of three decades of water contamination at Marines Base Camp Lejeune, N.C. The water was poisoned by leaking underwater storage tanks and contaminated with benzene, vinyl chloride, trichloroethylene, tetrachloroethylene and other chemicals.

Among the law’s provisions:

-Marine veterans and family members who lived or served at Lejeune for at least 30 days between 1957 and 1987 are eligible for health care coverage for the following illnesses connected to the contaminants: esophageal cancer, lung cancer, breast cancer, bladder cancer, kidney cancer, leukemia, multiple myeloma, myelodysplastic syndromes, renal toxicity, hepatic steatosis, female infertility, miscarriage, scleroderma, neurobehavioral effects and non-Hodgkin’s lymphoma.

-The so-called DeMint clause, insisted upon by Sen. Jim DeMint, R-S.C., allows the Department of Veterans Affairs to question individual applicants to prevent fraud, but the health benefits do not require patients to prove a connection between their diseases and the contaminated water, according to the office of Rep. Brad Miller, D-N.C.

-Language in the law requires future appropriations to pay for family members’ health care, though the VA has money for health care for the immediate future.

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